The Angelman Syndrome Family Conference is more than just a conference
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The Angelman Syndrome Family Conference is more than just a conference
18K views3 months ago
YouTubeIt's Our Wonderful Life
What an incredible week at the 2026 Angelman Syndrome Foundation Family Conference
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What an incredible week at the 2026 Angelman Syndrome Foundation Family Conference
68.5K views3 months ago
YouTubeIt's Our Wonderful Life
Angelman Syndrome Conference 2024 | Family Stories, Support & Highlights
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Angelman Syndrome Conference 2024 | Family Stories, Support & Highlights
14.4K views2 months ago
TikTokweb21104
There’s something truly special about walking into a space where you don’t have to explain—because everyone just gets it. 💙 The ASF Family Conference is more than sessions and speakers. It’s hugs in the hallway, kids finding instant friends, siblings feeling seen, and families realizing they can relax and be their authentic selves. ✨ What to expect: • 1,300 attendees • 200 individuals with Angelman syndrome • 450 siblings • 250 researchers, clinicians & industry partners • 50 speakers over 30 s
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There’s something truly special about walking into a space where you don’t have to explain—because everyone just gets it. 💙 The ASF Family Conference is more than sessions and speakers. It’s hugs in the hallway, kids finding instant friends, siblings feeling seen, and families realizing they can relax and be their authentic selves. ✨ What to expect: • 1,300 attendees • 200 individuals with Angelman syndrome • 450 siblings • 250 researchers, clinicians & industry partners • 50 speakers over 30 s
2.3K views9 months ago
FacebookAngelman Syndrome Foundation
ASF Family Conference Website
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ASF Family Conference Website
97 views6 months ago
YouTubeAngelmanSyndromeFdn
2026 ASF Family Conference Industry Update
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2026 ASF Family Conference Industry Update
177 views2 months ago
YouTubeAngelmanSyndromeFdn
💙 Angelman brought us together, but the laughter, friendships, and memories made us family. ❤️
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💙 Angelman brought us together, but the laughter, friendships, and memories made us family. ❤️
256 views2 months ago
YouTubeWayne Brown
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There is something so special about being surrounded by people who truly understand your life
525 views3 months ago
YouTubeIt's Our Wonderful Life
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Ionis Welcome to 2026 ASF Family Conference & Research Symposium
142 views3 months ago
YouTubeAngelmanSyndromeFdn
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19 days until the Angelman Syndrome Family Conference in Denver! 💙
299 views3 months ago
YouTubeIt's Our Wonderful Life
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Save the date! The 2026 ASF Family Conference will be July 30 - August 1, 2026. We're heading west to Aurora, Colorado at the Gaylord Rockies Resort & Convention Center. To be added to the invitation list, go here: https://mindfulmeetings.swoogo.com/2026asfconference/savethedate The 2026 theme, Soar, celebrates the limitless spirit of our community and a future full of possibility, where every individual is empowered to rise beyond limitations. 💙 Stay tuned for more info on sessions, registrati
2.1K viewsJul 14, 2025
FacebookAngelman Syndrome Foundation
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New ASF Podcast Episode: Epilepsy in Angelman Syndrome. Listen to this recording from the 2024 ASF Family Conference to gain valuable knowledge and strategies to manage epilepsy effectively. Dr. Mark Nespeca, Dr. Ron Thibert, and Dr. Robert Carson discuss identifying seizures, treatment options, seizure preparedness, non-convulsive status epilepticus (NCSE), and non-epileptic myoclonus (NEM)/tremors. Listen on Spotify, Apple Podcasts and YouTube Podcasts. | Angelman Syndrome Foundation
548 viewsDec 20, 2024
FacebookAngelman Syndrome Foundation
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🎤 Day 2 of the Angelman Syndrome Conference was truly inspiring 💙 To our amazing speakers, thank you for sharing your wisdom, life experiences and heartfelt vulnerability. Your voices brought strength, clarity and hope to every family and individual living with Angelman syndrome. You reminded us that knowledge is powerful and connection is everything. We are so grateful for the impact you made. #AngelmanSyndrome #AngelmanConference2025 #WisdomShared #VoicesOfHope #CommunityStrong #Gratitude |
355 viewsSep 25, 2025
FacebookAngelman Syndrome Association Australia
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Celebrate International Angelman Day with FAST! Around the world, families, researchers, advocates, and partners are raising awareness of Angelman syndrome and pushing research forward. This day reflects the strength of a global community united by progress, persistence, and shared purpose. Thank you to our global partners and affiliates for showing up and helping make Angelman syndrome visible today and every day. If you’re able, consider making a donation to support the research moving this fi
2.6K views8 months ago
FacebookFoundation for Angelman Syndrome Therapeutics
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Ready for trip to Aurora for angelman Syndrome conference and Daily glimpss
843 views2 months ago
YouTubeBrett's life
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Yukon family advocates for Angelman syndrome awareness and support
243 views3 months ago
YouTubeKOCO 5 News
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Huge thanks to the Sargent Family and the 4th Annual Maddie's Mission Block Party! Special thanks to all the sponsors, donors and the 500 attendees who helped raise $290,000 for the Angelman community! In the last 4 years, this special event has raised over $1million and made a huge impact on Angelman research, clinics and awareness for Angelman syndrome. | Angelman Syndrome Foundation
508 viewsOct 28, 2025
FacebookAngelman Syndrome Foundation
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Words shape how the world sees people with Angelman syndrome and how they see themselves. When we choose people-first language, we honor individuals for who they are, not a diagnosis. Behind every word is a person with personality, family, likes/dislikes, and a whole life being lived. ✨ Words matter. Choose them carefully. #angelmansyndrome #angelmansyndromefoundation #angelman #AngelmanStrong #StrengthInCommunity #WordsMatter #PeopleFirst #inclusionmatters | Angelman Syndrome Foundation
14.2K views9 months ago
FacebookAngelman Syndrome Foundation
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Colin Farrell's Heartwarming Journey Raising Son with Angelman Syndrome ❤️
14.8K views3 months ago
YouTubeB trend cast
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Yukon family advocates for daughter with Angelman syndrome to raise awareness and support
1.4K views3 months ago
YouTubeKOCO 5 News
1:19:44
Filling Your Own Cup: Self-Care from Both Sides of the Clinic Door
827 views8 months ago
YouTubeUniversity of California Television (UCTV)
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You are the Strength of the Angelman Community 💪 Your support makes everyday life better for individuals and families who live with Angelman syndrome. Give today: support.angelman.org/strength #angelmansyndrome #AngelmanSyndromeAwareness | Angelman Syndrome Foundation
1.1K views11 months ago
FacebookAngelman Syndrome Foundation
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On International Angelman Day, we debut the Weber family’s Souls of the Y story –– a story about a family whose world changed forever when their son, Cameron received an Angelman Syndrome diagnosis. They grappled with the loss of imagined milestones, and felt the sting of isolation, but eventually found strength from within themselves and their community. This is not just a story about resilience; it's a testament to the unwavering love and determination of a family. Our hope is that this video
37.2K viewsFeb 15, 2024
FacebookFox Valley Family YMCA
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Your donation supports all individuals with Angelman syndrome and their families. The ASF Family Fund, Counseling services, ASF Clinics and more life-changing resources are possible through donations. Donate today: https://support.angelman.org/campaign/619986/donate | Angelman Syndrome Foundation
380 viewsDec 31, 2024
FacebookAngelman Syndrome Foundation
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Colin Farrell’s Son Has Angelman Syndrome — So He Built a Foundation for Adults Like Him
35.5K views2 months ago
YouTubeNext Story
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FLYING TO THE ANGELMAN SYNDROME FAMILY CONFERENCE
34.6K viewsAug 9, 2022
YouTubeIt's Our Wonderful Life
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You can strengthen Angelman family support
297 views10 months ago
YouTubeAngelmanSyndromeFdn
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Colin Farrell’s Greatest Wish for His Son Goes Beyond Fame ❤️
5.4K views2 months ago
YouTubeGrace Mallory
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Attention Phoenix AZ . WE INVITE YOU TO JOIN OUR ANGELMAN STRONG FAMILIES AS WE RAISE AWARENESS . This is a family friendly event where we educate and advocate for children and adults who live with Angelman Syndrome. JOIN team SarahiKickingAS #angelfightingangelman #angelmanadvocate #SarahiKickingAS #angelmansyndrome #AzAngelmanStrong26 @AngelmanSFoundation
295 views6 months ago
TikTokangelfightingangelman
1:14:28
Angelman Syndrome through the Lifespan
718 viewsSep 6, 2019
YouTubeAngelmanSyndromeFdn
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