Living with microcephaly: A story of two sisters, The Hartley Hooligans
Living with microcephaly: A story of two sisters, The Hartley Hooligans
Feb 2, 2016
straitstimes.com
3.12.19 ~ Topeka-bound for our hearing for #ClaireandLolasLaw #HB2244 ~ So excited to help Lola & all the other kids who are struggling in Kansas to get the relief they need. We are also doing this in loving memory of our sweet Claire. 😇 Please pray for our family and our state today! Let’s do this!!!! 🌻💞💫 #Hope | The Hartley Hooligans
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3.12.19 ~ Topeka-bound for our hearing for #ClaireandLolasLaw #…
284.2K viewsMar 12, 2019
FacebookThe Hartley Hooligans
6.20.16 ~ Conscious decision making. ✔️ Using her arm to push switches and spin the toy. ✔️ Emotional responses. ✔️ Ability to pull her hand away to stop the activity. ✔️ Eye contact with new sounds of toy. ✔️ Diva behavior of instantly sleeping when annoyed still intact. ✔️ I love this girl o' mine sooooo much!!!!! 󾆫🏼 #sofreakinproud (PS - Thanks to our awesome speech/technology teacher, Kristin Wiebe, for lending us this toy to try & for all the cool ideas!!! We love you!!!! xoxo) | The Hart
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6.20.16 ~ Conscious decision making. ✔️ Using her arm to pus…
37.1K viewsJun 20, 2016
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I wanted to share this video that Cal put together... I could not love this more. 💗 Cal, Scott & I have spent our quarantine working on Claire & Lola’s Corner. This corner of our yard used to house a trampoline and after that, it was just a boring rock garden. We 3 decided to transform it into a space we could go to spend time remembering our girls. It has been emotional and special to be able to work on this project together. Cal and Scott had so many amazing ideas. The heart-shaped garden was
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I wanted to share this video that Cal put together... I could not love thi…
11.7K viewsJul 6, 2020
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2.8.19 ~ This night, this moment, this incredible daughter of ours... They were simply everything. ✨ #nighttoshine #LolaGrace #FBF | The Hartley Hooligans
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2.8.19 ~ This night, this moment, this incredible daughter of ours... …
16.4K viewsFeb 7, 2020
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9.26.16 ~ Mrs. Pocket loves her some Dr. Dre & Snoop Dogg vibroacoustic therapy in her new Somatron chair! (Thank you, Amy Aylward Brewer, for letting us try out this beast! Lolita crashed out for at least 2 hours the other day thumpin' to LL Cool J (OMG, that is my girrrrrrl!!!)! � She was less thrilled with Maroon 5 and Justin Timberlake. Ha!!! I am gonna need to buy stock in old school gangsta rap CD's or find a way to rig up an AUX cord to this bad boy though!) Both Lola & Claire really enjo
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9.26.16 ~ Mrs. Pocket loves her some Dr. Dre & Snoop Dogg vibro…
50.5K viewsSep 27, 2016
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11.15.16 ~ 💨 Mrs. Pocket loves zoomies!!! 💨 | The Hartley Hooligans
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11.15.16 ~ 💨 Mrs. Pocket loves zoomies!!! 💨 | The Hartley Hooligans
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Baby girl in action again!!! Claire is so proud of herself --> see her gri…
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@12secportrait ✍️ ⁣one line > one race⠀ 𝗮 𝘄𝗮𝘆 𝘁𝗼 𝘀𝘁𝗮𝘆 𝗵𝘂𝗺𝗮𝗻 ——— A huge thank you …
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7.26.16 ~ That does it. Gonna need to install one of these bad boys in …
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