Prenatal SMA treatment improved weight, movement, muscle health and survival in mice, but some benefits faded after therapy ...

The European decision on Scholar Rock’s SMA treatment apitegromab will depend on upcoming FDA results from a U.S. plant ...

England is expanding newborn screening to identify babies before SMA symptoms appear and support earlier treatment.

After several excruciating months of hip pain, columnist Brianna Albers finally has not only an answer — arthritis — but a treatment plan.

Serving as her friend Andrea's maid of honor enabled columnist Connie Chandler to reciprocate the kind of care Andrea always ...

Connie Chandler is a Christ-focused care and support specialist at the nonprofit organization Joni and Friends. She grew up in the foothills of North Carolina but now owns a home and lives in Fort ...

It's uncomfortable when people stare at her medical equipment, but columnist Alyssa Silva has learned to flip the script.

SMA patients with scoliosis show abnormal spinal muscle metabolism. These metabolic flaws lead to cellular energy deficiency ...

Alyssa Silva is a writer based out of Providence, Rhode Island. She was diagnosed with SMA type 1 in 1991 when she was just 5 months old. Aside from writing, Alyssa is the chief creative officer for ...

We are pleased to partner with the Muscular Dystrophy Association (MDA) to bring you coverage from the MDA Engage Symposium.

Our online provider finder is designed to help spinal muscular atrophy (SMA) patients and caregivers find a specialist near them. Enter your information below to locate healthcare providers in your ...

Spinal muscular atrophy (SMA) is an inherited neurodegenerative disorder characterized by progressive muscle weakness. SMA patients do not produce enough of a protein called survival motor neuron (SMN ...